York Down Syndrome Support Group
Welcome to York Down Syndrome Support Group
Who are we?
We are a parent led support group based in York in the UK. Our overall aim is to create and develop the conditions which will enable our children with Down syndrome to attain their full potential. We aim to support all those involved in the lives of our children including family members and professionals.
What we aim to do:
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offer personal support to new parents or parents with an antenatal diagnosis in what ever form they prefer
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host a monthly session (Saturday club) where families can come together to chat and play
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have regular social events for the whole family
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lend useful resources to families and professionals
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provide training for parents and professionals
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provide speech and language therapy support
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promote the awareness of Down syndrome and encourage the inclusion of all within society
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support high quality research about any aspect of living with Down Syndrome
Background
Our group started to get going formally in 2012. Our first Saturday Club meeting was in April of that year. We registered as a Charity (CIO) with the Charity commission in February 2021. We don't have any 'formal' paid for membership. We currently keep in contact with approximately 70 families via mailing lists (email and postal) and our families Facebook group.
Committee
All of our main group work is undertaken by the committee of voluntary Trustees supported by two co-ordinators. Our co-ordinators undertake support for the group both as volunteers and also on a sessional freelance basis (dependent on specific activities). The committee meet monthly except for August. Click here to meet them.